This is a first… one of our children going by ambulance to a hospital.
Katie is on her way, in this pic, from the Hutch Hospital to Children’s Mercy in KC. At this point, we still don’t know what’s wrong, but she’s running a fever. Now, we wouldn’t normally worry about a 101F fever, but since she’s very neutrapenic (low on the white blood cells called neutrophils) it’s a much more serious concern, heightened by just having started a treatment that should help those cells be produced more quickly, and combined with back pain.
So, she’s on her way to the hospital in KC with Laurel. We did dinner with the three remaining children at home, with Dad and Jeff (who’s in town for the weekend) and Lynn & Diane came out for a while.
We weren’t getting as much accomplished on the house as I’d hoped we would this weekend, but sometimes God changes your plans and little progress quickly changed to no more progress, and we continue to agree that God is Good.
We have decided that Katie should go full AIP (auto-immune protocol) diet, and Laurel will do that with her. The rest of us will remain mostly AIP plus eggs. We will see if this makes a difference.
Also, we are waiting for genetics testing results to come back from the NIH, and have hope that we might be given a direction to move in regards to a treatment for Katie… so far we don’t even really have possibilities other than the neutrophil booster.
And we will continue to remember that God is Good. Every Good Gift comes from Him, and only Good Gifts come from Him, and everything is under his sovereign and immediate control. Even as the ambulance pulls away with two of my girls in it, I’ll remember who He is, and why I am.
“As a child to his father, I offer to thee these things, the work of the hands which thou hast made. Do with them what thou wilt.” – Aule in The Silmarillion by JRR Tolkien